“She said, ‘I don’t want you to cut that scene and not put it down.’ And with ‘that scene,’ we knew what she meant,” said ‘I Am: Celine Dion’ director Irene Taylor — plus, whether the icon will ever sing again.
Céline Dion gave her fans an especially raw and weak look at her journey with stiff person syndrome in new documentary I am: Céline Dion.
During the Irene Taylor-directed film, Dion is seen struggling through a 10-minute seizure, screaming and crying in pain as her body moves uncontrollably. This showed Dion during a very distressing and weak moment where the celebrity was only “semi-conscious.”
As we talk to Selection, Taylor revealed what made her decide to continue filming during the impressive experience, revealing that the moment “grew quickly.”
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The Oscar-nominated director recalled watching everyone around Dion “do their job,” from security making sure she didn’t “fall off the table” to Dion’s supervisor calling her doctor.
“And I realized, ‘You realize what? I also have work to do. I don’t know what we’re going to do with this footage, but I’m just going to keep filming, because I’ve been filming with Celine for eight months, and she never asked me to stop filming. , she specifically told me, ‘Don’t ask my permission, just do it.’ So I simply did my job in that regard. But the human part of me was very uncomfortable,” Taylor admitted to the publication.
When Taylor showed Dion the “intensely revealing” scene in a difficult part of the film, the “My Heart Will Go On” singer demanded to keep it, even when Taylor suggested cutting out parts of the seizure that she felt were too invasive.
![Why Celine Dion Fought to Hold On to 'Intensely Revealing' Second Place in Her Documentary 1 626d4e0ec71e41b9b5f186c874b05065 md](https://thegurumedia.com/wp-content/uploads/2024/06/626d4e0ec71e41b9b5f186c874b05065_md.jpg)
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“I showed her my positive and difficult points, and the first thing she said was, ‘I think this movie can help me.’ I believe she meant a variety of issues by this. Afterwards, she stated, “And I don’t want you to cut that scene and not put it down.” And with ‘that scene,’ we knew what she meant,” Taylor remembers Dion saying.
“I even pressured her. I used to be like, ‘Properly, what about that half where you’re crying and they’re putting something up your (nose)…?’ I really pulled out the elements that to me were (potentially disturbing or invasive). She said, ‘It’s okay. I told you I don’t want you to cut it. That’s what I’m saying. That’s what it looks like.’”
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Throughout the documentary, Dion makes it clear that she wants to sing again, but knows she won’t be able to in her full “five octave” range.
Taylor revealed to the publication that she and Dion discussed “alternative ways of singing,” which included having a “narrower vocal range.”
“I believe she even talked about doing a mission in American Signal Language. She was actually just trying to think of all these alternative ways that she could still sing and perform and perform, but not necessarily sing that big five-octave tone that everyone is used to,” Taylor revealed.
“And I think she feels comfortable trying to do things in the studio. And I imagine she’s a little more vocal now than she was when we were filming, which is, I think, partly an indication that she has a more secure prognosis and treatment regimen with her new doctor. So this may be my non-professional opinion, simply observational.”
Dion was identified in August 2022 with rigid person syndrome, six years after leaving her husband and former supervisor René Angélil for most throat cancers. However, Dion has been battling symptoms — including excruciating muscle spasms, problems walking and breathing — for years.
The Grammy-winning singer spoke out for the first time about her 2022 prognosis, in an emotional video in which she revealed her health issues and announced that she would suspend – and eventually cancel – her 2023 shows.
The Prime Video documentary, I am: Celine Dion, is available to stream globally now.
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